Sjögrens syndrome forum

Hi guys!

I'm new to this forum & hoping someone might have experienced symptoms like inom have recently or might have some helpful tips/answers as I'm not getting much out of my doctors at the moment & it's leaving me feeling pretty scared.

To give you an overview--I'm 30 & have had Sjogren's Syndrome for 5 years now. Around 6 years ago inom started having extreme fatigue & funnen I have an underactive thyroid & then my blood work & symptoms led my previous rheumatologist in the U.S. to diagnose me with Sjogren's Syndrome. At one point she thought I might also have Rheumatoid Arthritis (this was probably encouraged by the fact that my paternal Grandmother has terrible RA), but over the course of the few years my rheumatologist decided it was Sjogren's only. My main symptoms the first 5 years were extreme fatigue, very dry eyes/dry mouth/dry vagina & sometimes feelings of weakness in limbs. inom felt like crap & exhausted easily most of the time but inom never had any significant noteworthy pain.

I now live in Australia & haven't seen that rheumatologist in a little over a year. A few weeks after seeing that rheumatologist while inom was visiting home inom retu

Welcome

Sjögren's Syndrome is an autoimmune disease. Autoimmune diseases feature the abnormal production of extra antibodies in the blood directed against various tissues of the body, which tends to lead to inflammation. The hallmark symptom of Sjögren's syndrome is generalized dryness, typically xerostomia (dry mouth) and keratoconjunctivitis sicca (dry eyes), known as sicca symptoms. Sjögren's syndrome may cause skin, nose and vaginal dryness and may affect other organs of the body, including the kidneys, blood vessels, lungs, liver, pancreas, peripheral nervous system or brain.
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Suffering with Sjogrens

Hi Hayley,

I would not worry much about Gluten if you don't have a problem with your bowels like celiac disease. They told me that most sjogrens sufferers would have a problem with celiac .

I try to avoid eating too much of it . I would normally buy gluten free products in my diet but it's very difficult and more expensive . I would buy pasta and bread biscuits and crackers cereals gluten free. Most supermarkets have a section for these gluten free foods but as I said don't worry about it too much because mostly everything has gluten soaps shampoos toothpaste lotions and chewing gum have gluten. So as I said if you don't have a problem don't worry.

My diet consists of can sardines ,tuna, fresh fish, chicken ,lean pork, quinoa , millet,herbal teas, honey, nuts,lots of green leafy vegetables , bananas, and apple . I would eat a low fat yoghurt now and then no caffeine or sodas.

But what works for me might not work for you we are all different .

Diet is the key of how we feel every day.

Let's keep in touch !